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Epilepsy Blog Relay: Building a Bigger and Bigger Circle of Support when You Have Epilepsy

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This post is part of the Epilepsy Blog Relay™ which will run from March 1 through March 31. Follow along!


We all get by with our friends’ support.Or is it our family?Or are they one?
I’ve walked through life, my needs have changed.As a child, I needed the care, feeding, and guidance of my parents.As an adolescent, my friends were everything to me, my mother became even closer, my father more distant.Then, when epilepsy slammesd my life at age 18, my parents, once again, became the drivers for my care.But this is just my story.
In his book, A Mind Unraveled, heralded writer Kurt Eichenwald tells of the “family” he found in his roommates at Swarthmore College.They looked after him during seizures and were his advocates in the world outside their dorm room.These were acts born of desire to protect one’s own, and Eichenwald, even artificially thrown together with them as a roommate, had become a part of their family.It was exhausting, though, and the caregivers could only take so much.
His st…

A Doctor with Epilepsy Calls for Greater Understanding by Medical Professionals

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While many -- possibly most -- doctors, nurses, and other medical professionals have compassionate, medically prepared abilities when confronted with a seizure, it's not always the case.  A friend of mine died shortly after ER staff left her in the waiting room while having over 70 myoclonic seizures.  Reason:  She wasn't unconscious, so they didn't think they were seizures.

In this illuminating article, Dr. Brian Smith from Spectrum Health Butterworth Hospital in Grand Rapids, MI, tells us of his experience with having a seizure during rounds.  Experiencing the stigma against epilepsy and lack of medical preparedness for seizure care, he joins many of us in calling
for greater training about epilepsy, such a common neurological disorder.

https://well.blogs.nytimes.com/2011/06/23/seeing-epilepsy-from-the-patients-point-of-view/?emc=eta1

Read it and nod.