Showing posts from June, 2018

YouTube's "Impulse" -- a Win for Epilepsy!

Let’s hear it for the good guys!!Add one more to the short list of films and series that don’t have negative images of people with epilepsy.
In YouTube Premium’s Impulse, based on the novel by Stephen Gould and directed by Doug Liman,Henrietta's (Henry's) seizures become portals to her superhuman power, teleportation.Sure, while intelligent, articulate, and physically attractive, she’s depicted as a funky, emotionally damaged 16-year-old who is slightly self-conscious of her epilepsy.However, most of her problems are attributed to her lack of a stable home.Her father disappeared when she was young, and she has moved around since, her mother’s flights from towns along the way precipitated by relationships gone bad.
Henry only refers to her epilepsy’s making her feel like an outsider once, maybe twice.And there’s no evidence that others at school or in the town look at her any differently because of her condition, even after she has a seizure in the middle of class.With stigma …

Innovating Our Strategies to Fight Stigma

This post is part of the Epilepsy Blog Relay™, which will run from June 1 to June 30, 2018.  Follow along!
The time has come for innovation.I’m not talking about in technology, but rather in how we fight to change the perception of epilepsy in the general public, fight the stigma.We’ve tried a handful of strategies…
We fight prejudice in the workplace, where many of the most egregious sightings of prejudice reside.We use social media to advertise the prevalence of epilepsy, saying that 1-2% of the population has epilepsy at any given time and an astounding 1 in 26 will be subject to epilepsy within their lifetimes.We try to get personal stories out there.But most often, they’re about our hardships, not about how typical our lives might be on balance.(After all, is anyone truly typical?)We struggle with how to get those among the 70% of us who have controlled seizures who hide their condition to begin to talk about their epilepsy.We hold walks and other events to raise awareness and fun…

Fighting for My Life: Guest Post by Shan O'Meara