Showing posts from March, 2018

Here's to the Caregivers!

This post is part of the Epilepsy Blog Relay™ which will run from March 1 to March 31, 2018. Follow along!

Here’s to the caregivers for people with epilepsy!Here’s to those who live with us, take us to the hospital, and love us any which way they can.And here’s to that selfless love.It gets us through all that life has thrown at us.
But what of those with epilepsy whose families don’t seem to be so loving?We can be shunted to the side, never truly to join the family table. How could these mothers, fathers, sisters, brothers, and grandparents be so heartless, seemingly embarrassed by the existence of “an epileptic?”
I’m graced with a loving family, but, in my support group, I’ve gotten to know wonderful people with epilepsy who have been emotionally shunted aside.One person – we’ll call her Emily – literally had to sit off to the side.She didn’t go to the family celebrations at cousins’ houses during the holidays, and her own family never hosted the events themselves, fearing the rest …

Guest Post by Shan O'Meara: What the Numbers Mean to Me

There are approximately 325 million people in the United States, as of January, 2018. Out of that 325 million, approximately 3 1/2 million, a little more than one percent have epilepsy. That one percentile makes us unique, a rare breed. That makes people with epilepsy a select few, members of an exclusive club, a club only people with epilepsy can join.

I would have loved to only have missed one on a test in school, but that didn’t happen, as much as I wish I had. Awareness for epilepsy was not as widespread now as it is today compared to when I was in school. I was still in denial that I had epilepsy and would be in denial for many years.
Our vision is 20/20 in hindsight only. There are so many things I wished I would have done differently, but I can’t change the past. No one can change their past. Everyone has to look forward because that’s all we can make different.
How many of us would be doing something different now if they didn’t have epilepsy? If we didn’t have epilepsy, that wo…