I had a fascinating talk with Jason Baranello, a remarkable person who was diagnosed with epilepsy 13 years ago and never – that’s right, never – came in contact with the stigma so many of us know so well.In fact, when he first meets people, he often leads with telling them he has epilepsy, then instructs on what to do if he has a seizure.Always the response is support and, often, curiosity about the big E.They have questions, and Jason answers them.
Has Jason found what I call "The Emerald City" - a place free from prejudice against epilepsy? Is it too good to be true?Possibly not.A few points of comparison of his experience vs. mine
Type of epilepsyTonic-clonicTonic-clonic
TriggerForget medsForget meds
Impact on sick timeLittleLittle
And now the fork in the road…
Self-perceptionHas nothing to doI’m “the other;” I’m whe…